#USA #New York #International Federation of Psoriasis #Psoriasis disease #UN General Assembly

Psoriasis: A Global Health Concern at the UN General Assembly

The International Federation of Psoriasis Associations (IFPA) aims to draw crucial attention to psoriasis during the upcoming UN General Assembly (UNGA) 80 in New York. With approximately 60 million individuals globally affected by this serious, non-communicable disease, the need for enhanced awareness and action is more urgent than ever.

Understanding Psoriasis

Psoriasis is a chronic inflammatory condition that can significantly impact one's quality of life. It not only affects the skin but can also involve joints and other organs. Individuals living with psoriasis face increased risks for other serious health issues, including diabetes, obesity, cardiovascular diseases, and depression. Despite the World Health Organization (WHO) recognizing psoriasis as a major public health issue in a resolution in 2014, progress remains limited. This has sparked a call from IFPA for renewed global commitment to improving health policies affecting those with psoriasis.

The Need for Advocacy

As representatives of the IFPA prepare to participate in the high-level meeting on non-communicable diseases (NCDs), their goal is to ensure the voices and experiences of those living with psoriasis are at the forefront of health policy discussions. The IFPA firmly believes that policies must be inclusive and address the specific needs of psoriasis patients.

"We aim to integrate the lived experiences of patients into health policy development and emphasize the importance of seeing individuals with psoriasis beyond their condition," remarked Frida Dunger, Executive Director of IFPA.

The upcoming UNGA provides an invaluable platform for advocating for international policies that prioritize health equity and accessibility in treating psoriasis and other NCDs.

Key Events to Amplify Voices

To further amplify their message, IFPA is organizing a high-level conversation in collaboration with Devex on September 22, just ahead of the UNGA. This session, titled ‘Psoriasis and NCDs: Centering Lived Experience in Policy,’ will highlight powerful voices from the psoriasis community, including those of patients who can provide firsthand insight into living with the disease.

• - Frida Dunger will moderate the conversation alongside Kate Reynolds, an IFPA ambassador, who herself navigates life with psoriasis. Their participation underscores the IFPA’s commitment to ensuring that decisions impacting the lives of people with psoriasis are made with their input.

Kate Reynolds expressed, "People living with psoriasis are more than just their illness; they are full individuals deserving to lead their best lives like anyone else. No decisions should be made about us without us."

The Path Ahead

Cognizant of the lack of adequate attention the disease has received from health systems worldwide, the IFPA is pressing for fundamental changes that ensure policies reflect the realities and needs of psoriasis patients. "Inclusive health policy is not optional; it's critical to ensure that over 60 million individuals globally do not get left behind," stated Dunger.

About IFPA

Founded in 1971 and headquartered in Stockholm, Sweden, the International Federation of Psoriasis Associations acts as a global advocate for all individuals affected by psoriasis. Its membership includes regional and national patient associations, collectively representing more than 60 million people worldwide. Through global coalitions, campaigns, and initiatives like the World Psoriasis Day, the IFPA redefines psoriasis as a key priority for more robust and inclusive health systems.

For more information about psoriasis and the efforts of IFPA, visit IFPA’s official website.