Mayo Clinic in Florida Recognized as Cavernous Malformation Clinical Center
Mayo Clinic in Florida has officially been designated as a Cavernous Malformation Clinical Center, showcasing its commitment to excellence in the treatment and management of cavernous malformations (CCM), a rare vascular disorder affecting the blood vessels in the brain and spinal cord. This designation comes as a significant recognition of the clinic's expertise and experience in diagnosing and treating this complex condition, which can lead to severe neurological problems like strokes and seizures.
Cavernous malformations are abnormal blood vessel formations that can disrupt normal blood flow in the brain, potentially causing serious health issues. It is estimated that approximately 9,000 Floridians are affected by this rare condition, which makes specialized care essential for effective management. As of now, the only treatment option available for CCM is surgical intervention, emphasizing the importance of accurate diagnosis and timely medical attention.
Connie Lee, CEO of the Alliance to Cure Cavernous Malformation, expressed satisfaction in recognizing the efforts of Mayo Clinic in Florida. She highlighted the clinic's dedication to providing exceptional patient care to individuals diagnosed with cavernous malformation, signifying an important addition to the network of designated CCM Clinical Centers and Centers of Excellence across the United States. Lee stated, "We are pleased to recognize Mayo Clinic in Florida for its commitment to providing expert care to individuals diagnosed with cavernous malformation."
The establishment of the CCM Clinical Center at the Mayo Clinic brings together a multidisciplinary team that comprises specialists in various fields, including neurology, neurosurgery, epileptology, genetics, neuroradiology, dermatology, and neuro-ophthalmology. This comprehensive team approach allows for personalized treatment plans tailored to meet the unique needs of each patient, ensuring that they receive the best possible care throughout their treatment journey.
Dr. Lindsy Williams, who serves as the cerebrovascular neurology division director and an assistant professor of neurology at the Mayo Clinic, expressed excitement over this significant designation. She stated, "Mayo Clinic in Florida is excited to receive the designation of CCM Clinical Center. We are proud to offer in-depth expertise that enables us to provide comprehensive, individualized care for our CCM patients."
Dr. Williams will be working closely with Dr. Rabih G. Tawk, a professor of neurosurgery at the Mayo Clinic, to lead the CCM Clinical Center. Together, they aim to enhance the quality of care for patients suffering from cavernous malformation, focusing on effective treatment strategies and improved patient outcomes.
The CCM Clinical Centers are part of a national network of 21 designated hospitals recognized by the Alliance to Cure Cavernous Malformation. This network was established to address the challenges surrounding delayed diagnoses and suboptimal surgical outcomes experienced by CCM patients, which have been significant barriers to effective treatment.
In addition to providing expert multidisciplinary care, the designated Centers of Excellence within this network also engage in vital research on CCM, contributing to the understanding and advancements in treatment options for this condition. The rigorous application process for becoming a CCM Center involves a thorough review by the Alliance to Cure Cavernous Malformation Medical Advisory Board, ensuring that only those clinics that meet the highest standards of care receive this designation.
Individuals seeking to schedule a consultation with the CCM Clinical Center at Mayo Clinic in Florida can do so by calling 904-953-0856. For those affected by cavernous malformation, access to specialized care is crucial for managing this complex disorder effectively.
The Alliance to Cure Cavernous Malformation remains dedicated to improving the lives of those impacted by CCM and driving research efforts aimed at finding a potential cure. More information about their mission and resources can be found at their website, alliancetocure.org.
Cavernous malformations are abnormal blood vessel formations that can disrupt normal blood flow in the brain, potentially causing serious health issues. It is estimated that approximately 9,000 Floridians are affected by this rare condition, which makes specialized care essential for effective management. As of now, the only treatment option available for CCM is surgical intervention, emphasizing the importance of accurate diagnosis and timely medical attention.
Connie Lee, CEO of the Alliance to Cure Cavernous Malformation, expressed satisfaction in recognizing the efforts of Mayo Clinic in Florida. She highlighted the clinic's dedication to providing exceptional patient care to individuals diagnosed with cavernous malformation, signifying an important addition to the network of designated CCM Clinical Centers and Centers of Excellence across the United States. Lee stated, "We are pleased to recognize Mayo Clinic in Florida for its commitment to providing expert care to individuals diagnosed with cavernous malformation."
The establishment of the CCM Clinical Center at the Mayo Clinic brings together a multidisciplinary team that comprises specialists in various fields, including neurology, neurosurgery, epileptology, genetics, neuroradiology, dermatology, and neuro-ophthalmology. This comprehensive team approach allows for personalized treatment plans tailored to meet the unique needs of each patient, ensuring that they receive the best possible care throughout their treatment journey.
Dr. Lindsy Williams, who serves as the cerebrovascular neurology division director and an assistant professor of neurology at the Mayo Clinic, expressed excitement over this significant designation. She stated, "Mayo Clinic in Florida is excited to receive the designation of CCM Clinical Center. We are proud to offer in-depth expertise that enables us to provide comprehensive, individualized care for our CCM patients."
Dr. Williams will be working closely with Dr. Rabih G. Tawk, a professor of neurosurgery at the Mayo Clinic, to lead the CCM Clinical Center. Together, they aim to enhance the quality of care for patients suffering from cavernous malformation, focusing on effective treatment strategies and improved patient outcomes.
The CCM Clinical Centers are part of a national network of 21 designated hospitals recognized by the Alliance to Cure Cavernous Malformation. This network was established to address the challenges surrounding delayed diagnoses and suboptimal surgical outcomes experienced by CCM patients, which have been significant barriers to effective treatment.
In addition to providing expert multidisciplinary care, the designated Centers of Excellence within this network also engage in vital research on CCM, contributing to the understanding and advancements in treatment options for this condition. The rigorous application process for becoming a CCM Center involves a thorough review by the Alliance to Cure Cavernous Malformation Medical Advisory Board, ensuring that only those clinics that meet the highest standards of care receive this designation.
Individuals seeking to schedule a consultation with the CCM Clinical Center at Mayo Clinic in Florida can do so by calling 904-953-0856. For those affected by cavernous malformation, access to specialized care is crucial for managing this complex disorder effectively.
The Alliance to Cure Cavernous Malformation remains dedicated to improving the lives of those impacted by CCM and driving research efforts aimed at finding a potential cure. More information about their mission and resources can be found at their website, alliancetocure.org.
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