Breakthrough T1D Calls for Continued Support for Type 1 Diabetes Research from Lawmakers

Advocating for Type 1 Diabetes Research

The Breakthrough T1D organization, previously known as JDRF, has made a powerful call to U.S. lawmakers to renew the Special Diabetes Program (SDP). This crucial funding initiative has been instrumental in advancing research for Type 1 Diabetes (T1D), which affects over 1.5 million Americans. The recent session was held during the Breakthrough T1D 2025 Children’s Congress, an event that uniquely connects young people living with T1D to decision-makers in Washington, D.C.

Led by Senators Susan Collins and Jeanne Shaheen, the Senate Appropriations Committee hearing served as a platform for youth delegates and advocates to share their personal stories and the importance of ongoing funding. Among the prominent figures present was Dr. Aaron J. Kowalski, CEO of Breakthrough T1D, who emphasized the necessity of the SDP in delivering transformative therapies and conducting cutting-edge research.

The Importance of the Special Diabetes Program

The Special Diabetes Program has been a driving force behind significant breakthroughs in T1D treatment and management. Among its many achievements is the development of Tzield, the first disease-modifying treatment that can delay the onset of T1D by an average of three years. Without renewal, this vital program is set to expire in September, jeopardizing future advancements in this critical area of healthcare.

Dr. Kowalski stated, “The Special Diabetes Program has helped put transformative therapies into the hands of people with type 1 diabetes. This program has fundamentally changed what it means to live with T1D.” He highlighted that the groundbreaking clinical trials and discoveries funded by the SDP significantly improve the lives of those affected by this challenging condition.

Personal Testimonies from T1D Champions

Emphasizing the impact of technology and legislative support, American Ninja Warrior champion Katie Bone also testified during the hearing. As a T1D individual, Bone shared her journey of competing at high levels in sports while managing her condition. She highlighted the contribution of SDP-funded research in developing technologies such as continuous glucose monitors that have made living with diabetes much more manageable.

“Today, I wear a continuous glucose monitor on my arm. It gives me a blood sugar reading every five minutes and lets me see trends in real-time on my phone. The development of this technology did not happen by accident—it is the result of policymakers funding the Special Diabetes Program,” she stated.

Young Advocates Making Their Voices Heard

The Children’s Congress showcased two exceptional delegates, Ruby Whitmore and Rachel White, who shared their aspirations and experiences with the committee. Sixteen-year-old Ruby aims to become a trauma surgeon and is actively involved in her community through organizations like the Kiwanis Club and Best Buddies. Rachel, also 16, is a nationally ranked tennis player and an honor student, aspiring to play college tennis.

Both young advocates greatly embodied the spirit and determination of those living with T1D, ensuring their voices were heard loud and clear on Capitol Hill. After the hearing, they continued their advocacy work by holding meetings with lawmakers to discuss the importance of ongoing research funding.

The Path Forward

As Breakthrough T1D continues its mission to improve outcomes for those living with Type 1 Diabetes, the urgency of renewing the Special Diabetes Program becomes increasingly clear. With a need for robust investments in scientific research, the organization remains committed to driving legislative action that can yield groundbreaking results for the T1D community and pave the way to potential cures.

In wrapping up the event, an essence of hope and determination permeated the air, as youth delegates and advocates continue to pressure lawmakers to make informed decisions that will affect countless lives. By investing in the future of T1D research and prioritizing health advancements, we come closer to a time when living with diabetes no longer means facing constant challenges.

For further details on how you can support T1D research, visit www.BreakthroughT1D.org.