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American Lung Association Launches New Support Program for Pulmonary Fibrosis

September is Pulmonary Fibrosis Awareness Month, and to highlight this observance, the American Lung Association has announced a significant initiative aimed at providing essential educational resources for those living with pulmonary fibrosis (PF) and their caregivers. This condition, which leads to the scarring of lung tissue, presents unique challenges for patients and their loved ones, impacting not only breathing but overall quality of life.

What is Pulmonary Fibrosis?

Pulmonary fibrosis is categorized as a type of interstitial lung disease where lung tissue becomes thickened and scarred, resulting in a progressive decline in lung function. It is estimated that there are over 200 forms of PF, with the most prevalent being idiopathic pulmonary fibrosis, which doesn't have a known cause. Even though no cure exists as of now, various treatments can help slow the progression of the disease and alleviate symptoms, improving daily living for affected individuals.

“Receiving a diagnosis of pulmonary fibrosis can be life-altering and often overwhelming,” stated Harold Wimmer, the President and CEO of the American Lung Association. He emphasized the importance of education and proactive management in dealing with the disease, which provides the foundation for a better quality of life.

The “Learning to Live with PF” Program

In response to these challenges, the American Lung Association has launched the “Learning to Live with PF” program, which leverages a multifaceted approach to support individuals grappling with this disease. The program is financially supported by the Feldman Family Foundation and includes:

• - Lung Health Navigators: These are trained professionals, including registered nurses and respiratory therapists, who offer personalized support. Individuals can connect with Navigators through various channels, such as phone calls, live online chats, or video conferencing. This tailored guidance provides patients with pertinent information and resources throughout their health journey.

• - Personalized Workbooks: Participants will receive a comprehensive workbook that covers vital topics such as understanding PF, medical management, nutritional advice, physical activity, and coping strategies for the emotional challenges posed by the disease. Navigators will utilize these workbooks to structure support sessions, ensuring participants stay informed and empowered.

• - Patient and Caregiver Network: This initiative aims to create a supportive community for those living with PF along with their caregivers. By linking individuals to educational tools, peer support, and updates regarding the latest research and clinical trials, the network fosters a sense of belonging and shared experience.

Mitchell Feldman, President of the Feldman Family Foundation, shared the emotional impact of their family's journey following the diagnosis of Irv Feldman, who battled pulmonary fibrosis until his passing in 2013. The foundation’s mission is to ensure that no one facing similar circumstances has to navigate the challenges of PF alone. Their partnership with the American Lung Association is a testament to creating meaningful resources for those affected.

How to Enroll

Those living with pulmonary fibrosis, or caring for someone who is, are encouraged to enroll in this beneficial program by visiting Lung.org/navigator or by calling 866-252-2959. More information about pulmonary fibrosis can be found at Lung.org/PF.

About the American Lung Association

Founded with the aim of saving lives through improved lung health, the American Lung Association stands as a leader in advocating for and educating individuals about lung diseases. Their initiatives target various health issues, from combating lung cancer to promoting tobacco-free futures, all while ensuring patients have access to the best possible resources for lung health.

To find local events supporting the American Lung Association's initiatives, individuals can visit Lung.org/events. For further inquiries, the organization can be reached at 1-800-LUNGUSA (1-800-586-4872).