#United States #Rare Diseases #NORD #Norwell #Kim Isenberg

Kim Isenberg Joins NORD Board of Directors

In a significant appointment for the National Organization for Rare Disorders (NORD®), Kim Isenberg has been selected to join its esteemed Board of Directors. With an extensive portfolio spanning over 30 years in public affairs and patient advocacy, Isenberg is anticipated to inject her expertise into the organization that champions the cause of individuals dealing with rare diseases.

A Wealth of Experience in Patient Advocacy

Isenberg's career trajectory encompasses a broad spectrum of roles and responsibilities, particularly within the realm of health care policy, drug development, and patient advocacy. Her rich experience has equipped her with profound insights that can drive NORD’s mission forward.

Pamela Gavin, CEO of NORD, emphasized Isenberg’s commitment to ensuring that the voices of rare disease communities are amplified within the healthcare landscape. "Kim's insight and passion will be invaluable as we work to improve the lives of the more than 30 million Americans affected by rare diseases," Gavin remarked.

Previous Roles and Contributions

Most recently, Isenberg was the Head of Global Public Affairs at Sanofi’s Rare Blood Disorders unit, where she made substantial strides in enhancing patient access and influencing national advocacy efforts. Her previous roles include serving as the Vice President of Policy, Advocacy, and Government Education at the Hemophilia Federation of America, and leading U.S. Field Advocacy at biopharmaceutical company Shire, now under Takeda.

Her work has led to the formation of partnerships among various stakeholders, bridging the division between industry, government, and nonprofit sectors to improve patient outcomes substantively.

A Vision for the Future

"I am deeply honored to join NORD's Board of Directors and to contribute to the critical work of elevating patient voices, driving thoughtful health policy, and creating collaborative solutions that improve outcomes for the entire rare disease community," Isenberg stated.

Based in Minneapolis, Isenberg holds an academic background with a Bachelor of Arts in Speech Communication from the University of Minnesota. This foundation, coupled with her vast professional experience, positions her as a significant asset to NORD.

About NORD and Its Mission

Founded in 1983, the National Organization for Rare Disorders is an independent, nonprofit organization dedicated to advocating for the 30 million Americans living with rare diseases. NORD collaborates with more than 350 patient organizations to foster progress in research, care, and policy tailored to rare conditions.

In conclusion, Kim Isenberg’s appointment is a strategic win for NORD, as her extensive background in advocacy and public affairs will undoubtedly strengthen the organization’s efforts in influencing health policy and improving the lives of countless individuals facing rare diseases. For more information about NORD and its initiatives, visit rarediseases.org.