Synapticure's New Ataxia Care Program: A Game Changer for Patients
Synapticure, a frontrunner in virtual healthcare, is proud to announce a new program explicitly designed for adults grappling with ataxias. These neurological disorders, which lead to a progressive decline in coordination, balance, and motor control, have been underserved in traditional healthcare frameworks. This groundbreaking initiative aims to transform the landscape of ataxia treatment by providing immediate access to specialized neurology across the United States.
In partnership with Biogen, Synapticure is committed to creating awareness and education about ataxia, addressing the severe shortage of expert care available to patients. Although Biogen supports these educational efforts, it is essential to highlight that they do not interfere with Synapticure's clinical services or patient care decisions.
The new virtual care program at Synapticure promises to provide tailored neurological support to those affected by ataxias, ensuring they can connect with experienced neurologists right from their homes. "For individuals facing ataxia, obtaining specialized neurological care has historically been a daunting journey, often taking years to navigate," said Sandra Abrevaya, CEO and Co-Founder of Synapticure. She emphasized the company’s goal to revolutionize this experience by making expert care accessible and personalized.
Ataxias affect tens of thousands in the U.S., and with a flurry of disease-modifying research underway, the demand for knowledgeable and informed care has never been more critical. The program aims to combat the difficulty families face in finding specialized ataxia care locally. Kristen Fortino from Biogen remarked, "The right care is more than just treatment; it's about support throughout the entire healthcare journey."
Led by Dr. Elizabeth Ferluga, a renowned expert in movement disorders, the Synapticure care team is poised to offer a rich array of services, from specialized evaluations and genetic counseling to thorough ongoing care. The holistic approach integrates various elements of patient management, optimizing care from the patient's residence.
Dr. Ferluga shared her excitement about the program, noting, "The Synapticure model allows us to evaluate patients thoroughly, help them comprehend their diagnosis, and provide strategic guidance regarding clinical trials. We strive to be a steadfast partner in their healthcare journey."
The ataxia care program contains several key offerings:
- - Virtual Consultations with neurologists trained in movement disorders, focusing specifically on ataxias.
- - At-Home Genetic Testing, coupled with counseling by certified genetic experts.
- - Comprehensive Evaluations to identify the causes of ataxia, including lab tests and imaging as necessary.
- - A thorough review of current medications to discuss evidence-based treatment options.
- - Information about ongoing clinical trials and guidance on potential participation.
- - Collaboration with physical, occupational, and speech therapists, ensuring holistic management of care.
- - Resources for behavioral health support and assistance for caregivers impacted by the diagnosis.
This innovative program can function either as a primary caregiving solution or adjunctively with established healthcare professionals the patients currently see, emphasizing collaboration over replacement.
The initiative is now available to adults living with ataxias nationwide. Interested patients can visit Synapticure's website or call to schedule an initial appointment. Synapticure represents a beacon of hope in the care landscape for those affected by these rare neurological disorders.
For further details about Synapticure and its new offerings, please visit
www.synapticure.com. This virtual platform stands at the forefront in transforming neurodegenerative care access and outcomes for individuals and their families across the country.