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Larry Falivena Takes Leadership Role as Chair of the ALS Association Board

The ALS Association has recently announced Larry Falivena's appointment as the Chair of its Board of Trustees, marking a significant development for both the organization and the ALS community. Diagnosed with Amyotrophic Lateral Sclerosis (ALS) in 2017, Falivena's unique perspective as a person living with the disease sets a powerful precedent as he steps into this critical leadership role. He is the second individual with ALS to assume the chair position since the well-known Ice Bucket Challenge brought unprecedented attention to the cause.

A Vision for Change

In his statement about the new appointment, Falivena expressed his honor in participating actively in the fight against ALS. His primary focus will be on capitalizing on the recent advancements in treatments, which have been significantly bolstered by research grants from the ALS Association. He is determined to ensure that other individuals suffering from ALS can have the same extended time with their loved ones that he has experienced due to these advancements.

Holding a Bachelor of Science degree in advertising and public relations from Florida Southern College, Falivena's career has spanned over two decades, culminating in his role at Salesforce. His experience in empowering mission-driven organizations uniquely positions him to navigate the nonprofit landscape of the ALS Association effectively.

Recognition of Past Leadership

The ALS Association's current president and CEO, Calaneet Balas, praised Falivena's appointment, asserting that his compassion and dedication will be instrumental in furthering the organization's mission of improving quality of life for those diagnosed with ALS. Under Falivena's predecessor, Scott Kauffman, who led the board for three years and stepped down due to personal commitments, the association achieved crucial milestones, including advancements in research and expanded care services.

Kauffman will continue to serve as the Immediate Past Chair while attending to family responsibilities, particularly caring for his son who has been affected by ALS since 2012. His contributions have greatly influenced the growth and outreach of the ALS Association, and he has been a vital force in championing legislative measures that support individuals with ALS.

Falivena's Advocacy Journey

Falivena's commitment to the ALS cause is marked not only by his leadership but also by initiatives such as the