#United States #New York #Parkinson's Disease #APDA #National Plan

APDA Celebrates the Establishment of the National Parkinson's Plan Advisory Council

The American Parkinson Disease Association (APDA) has issued a commendation following the announcement from the U.S. Department of Health and Human Services (HHS) regarding the recent appointments to the Advisory Council on Parkinson's Research, Care, and Services. This Council was established as part of the National Plan to End Parkinson's Act. The council's creation aims to provide a comprehensive approach to dealing with Parkinson's disease (PD), integrating diverse expertise from various stakeholders.

Importance of the Advisory Council

The Advisory Council's role is crucial as it will evaluate and prioritize federally funded initiatives related to PD research, prevention, diagnosis, treatment, and clinical care. It also seeks to tackle the financial challenges associated with Parkinson's, aiming to enhance health outcomes and overall quality of care for affected individuals. By addressing underlying environmental factors that may contribute to PD, the Advisory Council is poised to make a significant impact on the lives of those living with this condition.

Leslie A. Chambers, President and CEO of APDA, praised the Administration's commitment to the National Parkinson's Plan, emphasizing the importance of defining clear reporting timelines that allow for productive discussions and actionable outcomes. APDA is urging the Council to generate thorough reports that not only assess the investments required for effective management of PD but also highlight strategies for enhancing the quality of life for both patients and their families.

Key Appointments to the Council

Among the notable appointments to the Advisory Council are Cathi Ann Thomas, MS, RN, CNRN, and David G. Standaert, MD, PhD. These individuals are recognized for their long-standing commitment to advancing the cause of Parkinson's disease.

Cathi Ann Thomas serves as an Assistant Professor of Neurology and is the Program Director at the Parkinson Disease and Movement Disorders Center at Boston Medical Campus. Her contributions to APDA include developing patient programs and services that reach various communities. She has been involved in over 50 clinical research studies dedicated to understanding Parkinson's disease better and providing innovative treatments.

David G. Standaert holds the position of John N. Whitaker Professor and Chair of Neurology at the Heersink School of Medicine. He plays an essential role in guiding APDA's annual competitive review process for research grants, ensuring scientific excellence in projects aimed at combating Parkinson's.

Council Composition

The Advisory Council will include a diverse group of members, allowing for multifaceted insight into the challenges faced by the PD community. This varied representation includes patient advocates, family caregivers, healthcare providers, and government officials specializing in multiple aspects of health and environmental sciences.

Among the Council's members are:

• - Patient Advocates: Israel Robledo, Sara Whittingham, MD
• - Family Caregiver: Jessi Keavney, MBA
• - Health Care Provider: Cathi-Ann Thomas, RN, MS, CNRN
• - Biomedical Researchers: Alice Chen-Plotkin, MD, David Standaert, MD, PhD
• - Movement Disorders Specialist: Michael Okun, MD
• - Dementia Specialist: Bradley F. Boeve, MD
• - Representatives from Nonprofits: Deborah Brooks, MBA, Jessica Shurer, MSW
• - Key Government Officials from various health institutions including the National Institute of Neurological Disorders and Stroke, Environmental Protection Agency, and Centers for Medicare and Medicaid Services are also part of this initiative.

Moving Forward

The Advisory Council will be co-chaired by the National Institute of Neurological Disorders and Stroke and the Office of the Assistant Secretary for Health. They are expected to convene shortly to initiate their work. With APDA's Department of Public Policy closely monitoring developments, the Parkinson's disease community will remain informed about advancements in research, care, and services related to PD.

About the APDA

Founded in 1961, the APDA is committed to supporting individuals affected by Parkinson's disease. Through community resources, education, and research initiatives, the organization aims to improve the lives of individuals living with PD. Their efforts have led to investments exceeding $338 million to advance the understanding and treatment of this complex ailment.

For more information about APDA's ongoing efforts and resources available for those living with Parkinson's disease, visit www.apdaparkinson.org.