#USA #Philadelphia #CAR T-cell Therapy #John Crowley #Emily Whitehead Foundation

Keynote Address by John F. Crowley at the Believe Ball

This September, the Emily Whitehead Foundation will host its highly anticipated Believe Ball in Philadelphia, featuring a keynote speech by renowned biotech leader John F. Crowley. Crowley, who has made significant contributions to the realm of advanced therapies, is known for his race to find a cure for his children diagnosed with Pompe disease. His efforts inspired the film "Extraordinary Measures" and continue to resonate throughout the medical community.

The Believe Ball, scheduled for September 25, serves as a vital platform connecting patients battling cancer and rare diseases with industry leaders capable of driving innovation in treatments like CAR T-cell therapy. This year's event, located in the city where young Emily Whitehead became the first child globally to receive CAR T-cell therapy, is particularly poignant.

The gala is anticipated to attract over 400 attendees, including patients, caregivers, and professionals from the advanced therapies community, providing a golden opportunity to share experiences and foster support. It represents the Emily Whitehead Foundation's signature fundraising effort aimed at expanding its mission for those affected by cancer and rare diseases.

Crowley's personal journey into biotech began when two of his children were diagnosed with the severe neuromuscular disorder, Pompe disease. His determination to find a viable treatment led to the co-founding of Novazyme Pharmaceuticals, ultimately resulting in the development of life-saving therapies for his children. His book, "Chasing Miracles: The Crowley Family Journey of Strength, Hope, and Joy," details his family's harrowing experiences.

Tom Whitehead, co-founder of the Emily Whitehead Foundation, expressed the deep connection between Crowley's story and the mission of the foundation, stating, "John Crowley embodies the very essence of 'Believe.' His perseverance and innovation in medicine testify to the potential to transform lives. We're excited to have him share his vision with our growing community of Warrior patients and families."

Crowley's impact on the biotech sector today extends further as he represents the Biotechnology Innovation Organization (BIO), which advocates for biotech leaders and companies across the globe. His notable background includes service in the U.S. Navy Reserve, making him a multifaceted figure in biotech and healthcare advocacy.

In addition to Crowley's keynote address, the Believe Ball will showcase:

• - Stories of Hope: Firsthand accounts from patients and their families.
• - Embassador Awards: Presentation of prestigious honors, including the Bill Ludwig Pioneer Award and the Thomas G. Whitehead Beacon of Hope Award.
• - Nicole Gularte Fight for Cures Grant: Annual funding allocation for advanced therapies and support research.
• - Celebration Activities: Dinner, entertainment, a silent auction, and engaging interactive experiences for guests.

The foundation's campaign is bolstered by title sponsor Novartis and various partners, enhancing the support network for individuals affected by debilitating health conditions. Sponsorship opportunities for the Believe Ball are still available, and contributions assist in achieving the foundation's mission—a mission that grants hope for countless individuals capable of surviving and thriving thanks to advanced therapies.

Emily Whitehead, diagnosed with acute lymphoblastic leukemia at just five years old, stands as a testament to the power of pioneering treatments. After facing relapses and exhaustive conventional treatment options, her enrollment in a CAR T-cell therapy trial marked a pivotal turning point in her life. Today, Emily thrives cancer-free, symbolizing the triumph possible through innovation and perseverance.

The Emily Whitehead Foundation continuously strives to advocate for patients and improve access to life-saving advanced therapies. Through collaboration with a global network of scientists and industry allies, the foundation is committed to transforming Emily's survival into a beacon of hope for countless others facing similar challenges. For more information, please visit Emily Whitehead Foundation.