Join the Movement: NORD's 2025 Summit Aims to Propel Rare Disease Innovation to New Heights
Upcoming NORD Breakthrough Summit 2025: A Platform for Change
This fall, the National Organization for Rare Disorders (NORD) will spotlight the complex landscape of rare disease care during its highly anticipated 2025 Breakthrough Summit. Scheduled from October 19-21 at the Grand Hyatt in Washington, D.C., this year’s event promises to attract over 900 stakeholders from across the healthcare ecosystem — including patient advocates, researchers, regulatory bodies, and industry leaders.
A Critical Topic
In the U.S., roughly 30 million people are grappling with rare diseases, making this summit not just an ordinary meeting but a vital endeavor to confront an often-overlooked public health crisis. According to NORD’s CEO, Pamela K. Gavin, the summit serves as a catalyst for innovative thinking and action regarding rare diseases, stating, “One in 10 Americans lives with a rare disease, a crisis hiding in plain sight.” The event will facilitate important discussions that directly influence the development, funding, and distribution of treatments.
The Power of Voices
The theme for this year's summit, **
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