#USA #Los Angeles #ALS Research #ALS Network #ALS United

Ten Nonprofits Unite to Expedite Critical Research for ALS Cure

In an extraordinary display of collaboration, ten key organizations in the fight against amyotrophic lateral sclerosis (ALS) have officially teamed up. This unprecedented initiative brings together nine ALS-focused nonprofits with the ALS Network, formerly known as ALS Golden West, to enhance funding for crucial research aimed at finding a cure for this devastating disease.

The coalition includes well-respected groups such as ALS United Connecticut, ALS United Greater Chicago, ALS United Greater New York, ALS United Mid-Atlantic, ALS New Mexico, ALS of Nevada, ALS United North Carolina, ALS United Orange County, and ALS United Rocky Mountain. These organizations collectively represent a powerful network of independent ALS nonprofits, all focused on providing local care services, advancing research initiatives, and advocating for impactful policies.

Maximizing Research Impact

The primary goal of this partnership is to maximize the impact of their efforts through a centralized research program administered by the ALS Network. This initiative is designed to streamline the funding process, reduce infrastructure costs, and eliminate duplication, ultimately ensuring that more resources are directed toward groundbreaking scientific advancements in ALS research.

Sheri Strahl, the president and CEO of the ALS Network, emphasizes the importance of this collaboration. She stated, "The ALS Network's collaboration with these forward-thinking organizations represents an urgent, collective effort to catalyze groundbreaking research while minimizing overhead costs." This strategic partnership aims to expedite progress against ALS and ensure that every invested dollar goes directly toward vital research initiatives.

The Research Innovation Initiative, spearheaded by the ALS Network, aims to yield significant results in a disease area that has historically lacked positive outcomes. Kristen Cocoman, president and CEO of ALS United Greater New York, expressed her enthusiasm about this ambitious funding model, stating, "Our unique approach emphasizes the collective strength of the collaborating organizations, which have been at the forefront of ALS research for decades." This initiative aims to foster an innovative and collaborative environment that drives significant advancements towards curing ALS.

Expert Insights Driving Research

One of the keys to the success of this initiative lies in the work of the ALS Network's Scientific Advisory Committee (SAC). Composed of world-renowned researchers and leaders from the healthcare sector, the SAC is tasked with reviewing and selecting the most promising projects for funding. Julie M. Sharpe, president and CEO of ALS United Greater Chicago, highlighted the expertise of the committee, stating, "Members of the SAC have in-depth expertise related to ALS and other motor neuron diseases. By evaluating and funding projects quickly, we are confident that together we can cure ALS."

In 2024, the coalition approved funding for four significant research grants. Looking ahead, 2025 will see the introduction of a public-facing request for proposals, which is expected to significantly broaden the range of funded projects. Moreover, the initiative will also feature a community research committee, ensuring that the projects funded align closely with the interests and concerns of individuals living with ALS.

Dawn Newburg, Executive Director of ALS of Nevada, expressed pride in her organization's support of the ALS Network, remarking, "Together we can accelerate the progress of finding effective treatments for ALS and - finally - a cure for this baffling disease."

Strength in Unity

Jerry Dawson, Executive Director of ALS United, underscored the significance of collaboration in the fight against ALS. "When our members unite on critical research initiatives, they accelerate progress toward effective treatments and cures while strengthening their impact in local communities," he stated.

ALS, commonly referred to as Lou Gehrig's Disease, is a fatal neurodegenerative disease affecting nerve cells in the brain and spinal cord. Those diagnosed with ALS experience a gradual loss of motor functions, including the ability to move, speak, swallow, and ultimately breathe. It is crucial to note that veterans are affected by ALS at nearly double the rate of the general population, amplifying the urgency of this collective research effort, particularly as current ALS treatments remain ineffective.

This remarkable alliance among ten nonprofits demonstrates a unified commitment to research that could lead to groundbreaking breakthroughs in understanding and treating ALS. By pooling resources, knowledge, and expertise, these organizations aim to bring hope to countless individuals and families grappling with the challenges posed by this debilitating disease.

For more information about the ALS Network and their initiatives, individuals can visit alsnetwork.org or engage on social media at @yourALSnetwork. To learn more about ALS United, visit alsunited.org.