PPMD Celebrates a Victorious Weekend at the 2026 Disney Marathon in Orlando

PPMD Triumphs at the 2026 Walt Disney World® Marathon Weekend

The 2026 Walt Disney World® Marathon Weekend proved to be a monumental event for Parent Project Muscular Dystrophy (PPMD). The non-profit organization dedicated to advancing care, research, and advocacy for those affected by Duchenne and Becker muscular dystrophy celebrated triumphs not only on the racecourse but also in their mission. Held in the warm heart of Orlando, Florida, supporters came together to propel forward their cause, raising over $300,000 in the process.

Community Unites for a Common Cause

The event witnessed fierce participation from the Race to End Duchenne team, comprising 175 runners, families, and supporters who took on races ranging from 5K to a full marathon. Each mile was a tribute to loved ones battling Duchenne or Becker, ensuring these races were not just about athletic achievement but about honoring the journey of countless families. This annual gathering marked a remarkable display of unity and passion, consolidating the strength of the Duchenne and Becker community.

Among the standout performances was Jack Napoli from Boulder, Colorado, a long-term member of Team Danny. He clinched first place in both the Disney World 5K, with an impressive time of 16:30, and the Disney World 10K, finishing in 34:19. This remarkable achievement showcased not only Jack's determination but also the resilient spirit of individuals with Duchenne and Becker muscular dystrophy. Notably, this victory in the 10K marked Jack's third consecutive year of triumph, further highlighting his commitment to this cause.

A Message Beyond Medals

Nicole Herring, PPMD's Vice President of Development and Community Engagement, emphasized the essence of the weekend, stating, "Walt Disney World® Marathon Weekend is about more than medals and miles—it's about momentum." Every runner, donor, and supporter contributes to a shared vision of ending Duchenne and Becker, making an indelible impact on the lives of affected individuals and their families.

The emotional weight of this event was palpable, with each participant motivated by personal connections to Duchenne. Stories of struggle and triumph resonated throughout the event, as families gathered to share their experiences, turning the marathon into a powerful symbol of hope and determination.

A Remarkable Legacy

Since its inception in 2005, the Race to End Duchenne program has made noteworthy achievements, raising over $19 million to support critical initiatives for the Duchenne community. These funds directly empower PPMD's mission and enable runners of all abilities to channel their passion into meaningful change. John Killian, a dedicated team member and parent of a Duchenne patient, expressed, “Together, we are helping ensure that every member of our community has access to the therapies and quality care they need to live longer, stronger lives.”

With committed supporters and an unwavering focus on advocacy, PPMD aims to change the narrative surrounding Duchenne. The organization continues to secure critical funding and strive for medical advancements, ensuring families receive the care they deserve. PPMD's fight against Duchenne is fueled by an unyielding dedication to create a brighter future for all affected by the disease.

Look Forward

As the dust settles at the marathon, PPMD extends heartfelt gratitude to everyone who participated, donated, and volunteered, making the 2026 Walt Disney World® Marathon Weekend not just an event, but a memorable chapter in the fight against Duchenne. Their efforts helped to reinforce the belief that change is possible, one race at a time.

To discover more about the Race to End Duchenne, visit racetoendduchenne.org. Join the fight to end Duchenne and help create lasting change for those who need it the most.

PPMD remains steadfast in its commitment to let every person touch by Duchenne lead a powerful life filled with support, care, and the prospect of future treatments. As we look to the future, we will not rest until we conquer Duchenne.