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Parent Project Muscular Dystrophy Expands Its Leadership Team

In a significant move to enhance its mission and support for the Duchenne and Becker muscular dystrophy community, Parent Project Muscular Dystrophy (PPMD) has announced an expansion of its leadership team. The nonprofit organization is renowned for championing research and care initiatives targeted at these debilitating genetic disorders.

On August 18, 2025, PPMD revealed that Katherine Beaverson, MS, has been appointed Chief Executive Officer, while Pat Furlong, the founder and long-standing head of the organization, will maintain her role as President. This strategic shift aims to address new opportunities and challenges within the therapeutic landscape of muscular dystrophy, underscoring PPMD's commitment to better serve families affected by Duchenne and Becker.

Pat Furlong, who has been at the forefront of advocating for Duchenne patients for over three decades, expressed her enthusiasm about the leadership expansion, emphasizing Katherine's exceptional experience and dedication to the community. "Katherine is uniquely positioned to strengthen our partnerships and programs," Furlong said in her statement. "She will help accelerate our progress for families affected by Duchenne and Becker muscular dystrophy everywhere."

With over 15 years of expertise in the rare disease sector, Katherine Beaverson comes equipped with a wealth of knowledge from her background as a genetic counselor. Her career trajectory has included pivotal roles in clinical research, medical affairs, and patient advocacy. She is recognized for her knack for building strong partnerships within the clinical and research communities, ensuring that advancements are directly applicable to patient care. With her in this new role, PPMD aims to deepen its collaborations across all sectors involved in Duchenne and Becker muscular dystrophy.

Katherine expressed her commitment to PPMD's mission, stating, “I am honored to join PPMD and to continue supporting the breathtaking efforts of this community. Witnessing the dedication of families, clinicians, researchers, and advocates motivates me every day. I look forward to empowering PPMD's national and global networks to drive meaningful progress for those affected by these conditions.”

The appointment of Beaverson is expected to usher in a dynamic approach to PPMD’s initiatives. The enhanced leadership structure will not only strengthen the organization’s internal capacities but also reinforce its public voice in advocating for the Duchenne and Becker community. As PPMD continues its tireless mission to defeat Duchenne muscular dystrophy, this bolstered leadership stands as a testament to their unwavering commitment to patient-centered care.

At the core of PPMD’s efforts lies a commitment to ensuring optimal care standards for Duchenne and Becker patients. The organization champions the need for comprehensive healthcare access and innovative treatment options, working tirelessly to secure significant funding for research and therapeutic development. Since its inception in 1994, every initiative pursued by PPMD has been driven by the aim to enhance the quality of life for individuals living with Duchenne.

To learn further about PPMD's extensive programs and advocacy efforts, you can visit their official website at EndDuchenne.org, where updates on their missions and happenings within the Duchenne community are regularly shared. This leadership transition marks an exciting chapter for PPMD as it embraces growth and innovation on its path towards eradicating Duchenne muscular dystrophy at all levels.