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A Year of Transformation: Cure-CMT's Impact in 2025

As the year draws to a close, Cure-CMT proudly reflects on its accomplishments in improving the lives of those living with Charcot-Marie-Tooth (CMT) disease. Established with a clear mission to drive innovation, provide support, and foster community, Cure-CMT has been making strides through its initiatives aimed at empowering patients.

Building Strategic Partnerships

In its first year since launching in May 2025, Cure-CMT forged valuable partnerships with scientists, medical experts, and industry leaders. These collaborations have resulted in significant investments in groundbreaking technologies aimed at treating CMT, ensuring that the organization remains at the forefront of research and development.

One remarkable achievement is the substantial funding raised, totaling over $1 million. This was highlighted by a successful annual fundraiser, the Cure-CMT Golf Challenge Tournament, which alone brought in $200,000. This tournament not only showcased the organization's commitment to addressing CMT but also underscored community engagement and support.

Direct Support for Patients

Cure-CMT’s direct involvement with patients has led to life-changing assistance for many. The organization has funded custom braces for seven patients, helping them regain mobility and enhance their quality of life. Moreover, two individuals have received financial backing for reconstructive surgeries along with support for essential expenses such as travel and medications. Currently, additional funding for future patients is in progress, ensuring continued support for those in need.

In addition, the recent commitment of $500,000 from a generous donor is poised to significantly advance Cure-CMT's mission. This vital support will facilitate investments in biotech and pharmaceutical companies focused on finding a cure for CMT while also ensuring resources are available for immediate surgical interventions.

Innovative Investments in Research

Cure-CMT's CURES (Capital Uniting Research and Evaluation Strategy) Team has been working diligently, evaluating companies such as Armatus Bio, which is pioneering innovative RNAi therapeutics for neurological diseases. This approach ensures that the organization is only investing in potential game-changers that align with its mission. By backing research that addresses the underlying causes of CMT, Cure-CMT is driving hope for millions affected by the disease.

An Invitation to Take Action

As 2025 comes to a close, Cure-CMT invites the community to join its initiatives and lend support through donations. Each contribution goes directly to assisting patients, with 100% of the proceeds allocated to the organization's mission. The call to action is clear: visit cure-cmt.org/donate/ and help match the generous donation received, thereby amplifying the impact that Cure-CMT has on the lives of those living with CMT.

Looking Forward

Looking ahead, Cure-CMT plans to continue advocating for research funding, expanding partnerships, and increasing support for patients. The community's support will be essential in sustaining these efforts, driving advancements in CMT treatment while creating a network of hope and resilience. We wish everyone a joyful holiday season and appreciate your support in helping us turn aspirations into reality.

To learn more about Cure-CMT and its significant work in 2025, or to connect with their mission, visit cure-cmt.org. Your involvement could make a world of difference in the lives of countless individuals affected by CMT.