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Creating a Local Support System: The Guam Chapter of NBDF

The recent establishment of the Guam Chapter of the National Bleeding Disorders Foundation (NBDF) marks a significant milestone in enhancing healthcare accessibility for individuals suffering from bleeding disorders in the region. This development is the culmination of years of collaboration involving local patients, healthcare providers, and community advocates.

In 2023, NBDF officials first engaged with Guam's bleeding disorders community to address pressing health concerns. Kenneth McElderry, director of chapter development for NBDF, highlighted the organization's commitment: "We met with about 43 members of the community on Guam in 2023 after we heard some concerns that they weren't getting access to the type of treatment and care that the community needed." This initial outreach uncovered vital insights regarding the deficiencies in medical care, which often left patients without crucial access to specialized hematological services.

The primary objectives outlined by community advocates included the need for professionals specializing in bleeding disorders and improved educational resources. TaniaMarie Mendiola-Sgambelluri, an advocate and parent of children affected by these conditions, underscored this, stating: "The biggest need we heard from the community was for a medical team that specializes in bleeding disorders, along with better information about how to access care."

The collective efforts of various organizations, including the Guam Department of Public Health and Social Services and the HRSA Western States Regional Hemophilia Network, have significantly improved healthcare services on the island. This partnership has enabled the organization of comprehensive clinic days, during which rotating medical teams comprising hematologists, nurses, and physical therapists can attend to patients' needs. These team efforts aim to improve health outcomes for individuals facing hemophilia and other rare bleeding disorders.

Since the initiation of these collaborative efforts, education and community-building initiatives have also been on the rise. Following the establishment of the Guam Comprehensive Hemophilia Care Program, community-building events such as Education Days have been held biannually since 2023. Furthermore, a family camp organized in May 2026 drew 76 members of the local community, emphasizing the growing support network for afflicted individuals and their families.

As the Guam Chapter officially takes flight, plans for its inaugural events are already in motion, set for the weekend of October 16. These events will kick off with a clinic day, followed by a community education day, culminating in Guam's inaugural Unite for Bleeding Disorders Walk. Emphasizing the long-term commitment, McElderry reassured the community: "We want the bleeding disorders community in Guam to know that we are in it for the long haul." The emphasis on consistent support serves to assure patients that they will receive the necessary attention to maintain their health and well-being.

With the establishment of this chapter, Mendiola-Sgambelluri sees a promising future: "This chapter will benefit not only the patients now, but children and the generations to come. With what we're building today, future generations will know more about their bleeding disorder and how to handle it in their daily lives." This statement encapsulates the essence of the chapter's mission: to foster a well-informed community that can navigate the complexities of bleeding disorders with confidence.

In summary, the Guam Chapter of the National Bleeding Disorders Foundation represents not just a new organizational branch but a thriving support system for individuals and families affected by bleeding disorders. The chapter will play a vital role in providing education, advocacy, and a strong community bond, ultimately aiming to enhance the lives of those served.

For more information on the initiatives and support available through the Guam Chapter, visit gu.bleeding.org.

About the National Bleeding Disorders Foundation (NBDF)

The National Bleeding Disorders Foundation is dedicated to promoting research, providing education, and advocating for individuals affected by inherited blood and bleeding disorders. Formerly known as the National Hemophilia Foundation, NBDF's rebranding reflects its broad mission to support a wide spectrum of bleeding disorders beyond hemophilia alone. By equipping families with knowledge and resources, NBDF enables them to lead healthier, more informed lives.