#United States #Lupus Foundation #Chicago, IL #Lupus Research #ACR Convergence

Latest Advances in Lupus Research Unveiled

Introduction

The Lupus Foundation of America (LFA) is set to showcase significant advancements in patient-centered research at the upcoming American College of Rheumatology (ACR) Convergence 2025, scheduled from October 24 to 29 in Chicago, Illinois. This year's meeting will feature groundbreaking studies aimed at enhancing representation in lupus clinical trials, leveraging digital health innovations, and accelerating future research and care in lupus.

Advancing Lupus Care

Dr. Joy Buie, Vice President of Research at the LFA, expressed enthusiasm regarding the foundation's broad array of research presentations. "We are excited to demonstrate how we are pushing the boundaries of lupus research, ensuring that each individual living with lupus feels represented and supported in ongoing studies and treatments," she remarked.

Increasing Representation in Clinical Trials

One prominent study titled "Increasing Participation in the FT819 Cell Therapy Trial Among People Living with Lupus" aims to explore attitudes toward CAR T-cell therapy clinical trials. Focus group discussions revealed various perceived benefits, including the potential for improved quality of life and remission. However, concerns about side effects and logistical challenges were also noted. This illustrates the necessity for more nuanced communication regarding clinical trials to attract wider participation, particularly among underrepresented groups.

In another study, insights gained from the LFA's RAY Patient Registry indicated that only 16% of participants identify as Black/African American, despite this group constituting a significant demographic within the lupus population. The research emphasizes the importance of community trust and culturally relevant communication strategies to enhance engagement and ensure accurate representation in clinical research.

Digital Health Innovations

The LFA is making notable strides in digital health, as indicated by the implementation of a self-management mHealth app, the Strategies to Embrace Living with Lupus Fearlessly (SELF) app. Recent promotional efforts on social media successfully recruited over 1,700 new users, demonstrating the effectiveness of digital tools in fostering community support and disease management.

Furthermore, the LFA's virtual education program, "Lupus You: Answers. Advocacy. Action," has reached over 20,000 registrants. This growth signals a crucial demand for accessible educational resources aimed at enhancing patient knowledge and empowering those affected by lupus.

Shaping the Future of Lupus Research

A multidisciplinary study led by Dr. Christie Bartels demonstrates the adaptation of an HIV care intervention into a lupus-specific electronic health record (EHR) dashboard. This initiative has the potential to bridge care gaps by providing tailored reminders for patients due for appointments or lab work. Such innovative approaches are essential for improving care delivery and enhancing patient experiences.

Additionally, the LFA's collaboration with Wayfinder Health Strategies and Emory University seeks to highlight the impact of peer support in digital health programs, creating sustainable strategies for lupus self-management.

Supporting Early Career Scientists

The ACR meeting will also spotlight research from early career scientists funded by LFA, showcasing topics ranging from racial differences in cardiovascular events among lupus patients to the role of specific genetic variations in disease manifestation. These presentations underscore the organization's commitment to fostering new talent in lupus research and advocating for diverse perspectives within the scientific community.

Conclusion

As the Lupus Foundation of America prepares to unveil these innovative studies at the 2025 ACR Annual Meeting, it emphasizes the importance of inclusive research practices and the integration of digital health solutions in lupus management. Attendees can look forward to learning about these advancements and their potential to shape the future of lupus research and care. Stay connected for real-time updates and insights by following LFA's social media channels during the conference.

For more information about the Lupus Foundation of America and its initiatives, visit lupus.org.