CSL Behring Publishes Archive of HAE Online Public Lecture on Patient Challenges

CSL Behring's Online Public Lecture on HAE

CSL Behring, headquartered in Tokyo, has recently made available the archive of its online public lecture on hereditary angioedema (HAE) titled "Walking with Your Doctor Through HAE." This significant event took place on June 7th, 2025, and is aimed at illuminating the invisible struggles faced by HAE patients, emphasizing the critical importance of communication and understanding.

Focus of the Lecture

The lecture specifically addressed the challenges encountered by patients with HAE and their families, offering insights and tips for enhancing their quality of life. Esteemed guest speakers included specialists involved in HAE treatment, representatives from patient organizations, and experts who have researched the support available for rare diseases. Through a blend of presentations and discussions, attendees gained a comprehensive understanding of HAE.

Understanding HAE

Hereditary angioedema is characterized by sudden swelling episodes that can occur in the skin and abdomen. A severe manifestation may involve swelling of the throat, leading to difficulty in breathing, which can pose life-threatening risks. Many patients relay the struggle of communicating the severity of their symptoms, which leads to issues in establishing effective communication with their primary care providers. In addition to health-related challenges, patients often navigate significant life events such as education, employment, and family planning, all of which can pose unique hurdles.

Lecture Highlights

The following three key segments were presented during the lecture:
1. Understanding HAE: Insights into the fundamentals of hereditary angioedema and patient perspectives on coping and life philosophies.
2. Invisible Struggles: The importance of dialogue surrounding invisible suffering from the viewpoint of a sociologist.
3. Navigating Life Events: How patients can effectively engage with their healthcare providers and build supportive relationships amidst life changes.

Commitment to Patient Care

CSL Behring continues to listen to the voices of patients and families grappling with rare and challenging diseases, striving to address unmet needs. The organization is dedicated to providing up-to-date, evidence-based information to improve the quality of life for HAE patients and their families.

Additional Resources

For more information about HAE and to view the archived lecture, please visit the following links:

About CSL Behring

As a global biotechnology company specializing in biological therapies, CSL Behring aims to innovate treatments for serious and rare diseases. In Japan, their focus areas include immune and rare diseases, hemophilia, and emergency medicine. Having celebrated its 20th anniversary in 2020, CSL Behring is poised to further enhance the quality of life for patients and their families in the Japanese medical landscape. More information is available at CSL Behring Japan.

About CSL Limited

Founded in 1916, CSL Limited is a global biotechnology leader with a broad portfolio that includes treatments for hemophilia, immunodeficiency syndromes, and vaccines for influenza among others. With over 32,000 employees aiding patients in more than 100 countries, CSL is committed to leveraging innovative research and development to enhance patient lives. For more information on CSL’s advancements, visit CSL.com.