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LGS Foundation Promotes International LGS Awareness Day

The Lennox-Gastaut Syndrome (LGS) Foundation has announced the return of International LGS Awareness Day™ on November 1, 2025. This significant event marks the commencement of Epilepsy Awareness Month and shines a spotlight on the urgent need for increased research funding and innovation in the realm of Lennox-Gastaut Syndrome. With a focus on uniting patients, healthcare providers, and researchers, the foundation is aiming to raise awareness, speed up research efforts, and offer support to the families affected by LGS.

Dr. Tracy Dixon-Salazar, Executive Director of the LGS Foundation, shared the foundation’s commitment by stating, “Every day, families affected by LGS face battles that much of the world remains unaware of. International LGS Awareness Day serves not only as an awareness initiative but also as a global call to action to propel research forward and guarantee a brighter future for those living with LGS.”

Key Facts and Urgent Needs

LGS is a severe form of epilepsy characterized by treatment-resistant seizures, cognitive impairments, and significant behavioral challenges. Affecting more than one million children and adults globally, it presents challenges that are not adequately recognized. Shockingly, LGS is more prevalent than both cystic fibrosis and Lou Gehrig's disease, yet it remains drastically underfunded and underappreciated within the medical community. The limited awareness surrounding LGS often results in unmet treatment needs for many patients.

Global Campaign: Six Weeks of Action

Kicking off on October 13 and running through November 23, the campaign will feature International LGS Awareness Day on November 1, as well as other initiatives like Illuminate for LGS, where landmarks worldwide will be lit up to raise visibility. A special multi-day online silent auction will also be held to both enhance awareness and fund vital research initiatives.

Engagement Tools

The LGS Foundation urges organizations and individuals to adopt various awareness tools. Initiatives include:

• - Together for a Breakthrough apparel and yard signs to boost local conversation and visibility.
• - Digital content and awareness graphics designed for online sharing to further spread the message.
• - Hosting local events or launching peer-to-peer fundraising campaigns to inspire active participation in their respective communities.

Research Initiatives and Partnerships

The LGS Foundation is heavily invested in research, supporting multiple initiatives including the LGS Learn From Every Patient Database and Cure LGS 365 Research Grants. These programs aim to expedite the discovery of underlying disease mechanisms while fostering collaboration across various sectors. The foundation seeks corporate and industry partners to enhance the impact of their awareness, research, and family support initiatives.

Why This Matters

As one of the most prevalent rare epilepsies, LGS exhibits a significant need for medical advancements and support. For biotech and pharmaceutical firms, collaborating in LGS awareness efforts can elevate the visibility of the struggles faced by families, enabling them to pioneer treatment innovations and refine clinical trial designs centered on patients. Engaging stakeholders today can help define the research agenda, foster earlier diagnoses, and enhance therapeutic options, ultimately improving lives.

In conclusion, the LGS Foundation calls on everyone to join their mission to foster awareness and research for Lennox-Gastaut Syndrome. Interested parties are encouraged to reach out to the foundation to explore partnership opportunities.

About the LGS Foundation

The LGS Foundation is a dedicated nonprofit organization committed to enhancing the lives of individuals affected by LGS through advancing research, education, awareness, and support for families. For more information, please visit www.lgsfoundation.org.