PFF Education Symposium to Address Pulmonary Fibrosis and ILD for Patients and Families
The Pulmonary Fibrosis Foundation (PFF) is set to host a significant event, the PFF Education Symposium, virtually on November 12 and 13, 2026. This two-day symposium aims to connect patients, caregivers, families, and lung transplant recipients with leading experts in pulmonary fibrosis (PF) and interstitial lung disease (ILD). Registration is now open, allowing those interested to partake in valuable sessions designed to enhance understanding and improve quality of life for individuals grappling with these complex lung conditions.
During this symposium, participants can expect to gain insights into the latest research, treatment options, and practical advice relevant to daily life. Addressing critical topics such as supplemental oxygen management, decision-making in care, and coping mechanisms after loss—including support for grief—this event comprehensively supports attendees at every stage of their journey with PF and ILD.
As stated by Dr. Amy Hajari Case, Chief Medical Officer of the Pulmonary Fibrosis Foundation, the need for reliable information and community support is paramount for those living with these conditions. "Living with pulmonary fibrosis or interstitial lung disease requires more than clinical treatment. Patients and families need resources that provide practical tools and a community that truly understands their experiences," she emphasized. The PFF Education Symposium aims to bring together these essential resources, enabling participants to better navigate their lives with PF and ILD.
Topics to be Highlighted
The symposium will feature a range of informational sessions, among which are:
Building a Supporting Community
The PFF Education Symposium reflects a broader vision of the Pulmonary Fibrosis Foundation. It aims to create a supportive environment where individuals can connect with experts, engage with cutting-edge knowledge, and become part of a community that understands their challenges. The resources extend beyond the symposium, as PFF facilitates a national Care Center Network, creates resource materials for newly diagnosed patients, and runs support groups that foster connections between individuals facing similar journeys. Additionally, initiatives like the PFF Community Registry allow patients and their families to engage directly in research aimed at improving treatments and finding a cure.
The Pulmonary Fibrosis Foundation is dedicated to accelerating research and empowering its community, with the ultimate goal of transforming care for pulmonary fibrosis patients. The Foundation has received a four-star rating from Charity Navigator and maintains accreditation from the Better Business Bureau's Wise Giving Alliance, affirming its commitment to transparency and excellence in health care service.
For more information and to register for the PFF Education Symposium, please visit pulmonaryfibrosis.org/symposium. Your participation could not only benefit you but also contribute to a collective effort in enhancing care and support for all affected by pulmonary fibrosis.
This symposium is not just about medical insights but is also about creating a network of support that can help individuals face the emotional and practical challenges posed by PF and ILD. Don’t miss out on this opportunity to connect, learn, and grow with experts and peers in the community.
During this symposium, participants can expect to gain insights into the latest research, treatment options, and practical advice relevant to daily life. Addressing critical topics such as supplemental oxygen management, decision-making in care, and coping mechanisms after loss—including support for grief—this event comprehensively supports attendees at every stage of their journey with PF and ILD.
As stated by Dr. Amy Hajari Case, Chief Medical Officer of the Pulmonary Fibrosis Foundation, the need for reliable information and community support is paramount for those living with these conditions. "Living with pulmonary fibrosis or interstitial lung disease requires more than clinical treatment. Patients and families need resources that provide practical tools and a community that truly understands their experiences," she emphasized. The PFF Education Symposium aims to bring together these essential resources, enabling participants to better navigate their lives with PF and ILD.
Topics to be Highlighted
The symposium will feature a range of informational sessions, among which are:
- - Updates on Research and Clinical Trials: Explore groundbreaking developments that shape the understanding and treatment of PF and ILD.
- - Treatment and Daily Care: An overview of medications, supplemental oxygen, and various treatment paths.
- - Making Care Decisions: Practical guidance for patients and their families in choosing the right care and treatments.
- - Life After Diagnosis and Lung Transplant: Support for maintaining quality of life after diagnosis and what to expect post-transplant.
- - Addressing Grief and loss: Offering resources to support those dealing with the emotional toll of losing a loved one.
Building a Supporting Community
The PFF Education Symposium reflects a broader vision of the Pulmonary Fibrosis Foundation. It aims to create a supportive environment where individuals can connect with experts, engage with cutting-edge knowledge, and become part of a community that understands their challenges. The resources extend beyond the symposium, as PFF facilitates a national Care Center Network, creates resource materials for newly diagnosed patients, and runs support groups that foster connections between individuals facing similar journeys. Additionally, initiatives like the PFF Community Registry allow patients and their families to engage directly in research aimed at improving treatments and finding a cure.
The Pulmonary Fibrosis Foundation is dedicated to accelerating research and empowering its community, with the ultimate goal of transforming care for pulmonary fibrosis patients. The Foundation has received a four-star rating from Charity Navigator and maintains accreditation from the Better Business Bureau's Wise Giving Alliance, affirming its commitment to transparency and excellence in health care service.
For more information and to register for the PFF Education Symposium, please visit pulmonaryfibrosis.org/symposium. Your participation could not only benefit you but also contribute to a collective effort in enhancing care and support for all affected by pulmonary fibrosis.
This symposium is not just about medical insights but is also about creating a network of support that can help individuals face the emotional and practical challenges posed by PF and ILD. Don’t miss out on this opportunity to connect, learn, and grow with experts and peers in the community.
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